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Rachel was born on March 15, 1993, in Janesville, Wisconsin.  She grew up the youngest of four siblings and amongst many cats and dogs.  She was an active member of St. William Catholic Church in Janesville.  Rachel had a passion for outdoor activities including swimming, kayaking, hiking, and camping and was a member of the high school swim team for four years. She also enjoyed rock scrambling at Devil's Lake State Park.


Rachel was studying to be a pharmacist at St. Louis College of Pharmacy, driven by her passion and kind nature to serve patients.  Rachel had completed four years of the six year Pharm. D. program when she passed away. 

Rachel passed away in her sleep on May 20, 2015.  She had previously shown no signs or symptoms prior to her death.  Through genetic testing, we learned that Rachel had Long QT Syndrome.  Upon this diagnosis, we have learned that many family members also have this condition, including her brother, sister, nephew, father, grandmother and much of the extended family.


The Rachel's Long QT Foundation was started by the family and friends of Rachel Lancour, after we lost her unexpectedly on May 20, 2015 to Long QT Syndrome (LQTS).  Our goal is to do as much as we can to raise awareness around this condition so that others may be able to prevent such a tragedy.  


LQTS claims the lives of 4,000 children and young adults annually. In many of these cases, the first symptom is sudden death.  About 1 in 2,500 people in the U.S. have LQTS, many of whom are completely unaware.

Through our fundraising efforts thus far, we have been able to make the following donations:


  • $4500 donation to the SADS foundation -

  • AED was purchased and donated to the Janesville Historical Society for use at the Tallman House


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